Over the last decade the European Union (EU) has been coordinating actions addressing various aspects of rare diseases and has funded several cross-border research projects. Recently the EU has initiated the biggest rare disease interna- tional collaborative effort by launching the International Rare Diseases Research Consortium (IRDiRC). RARE-Bestpractices is one of the more than 100 collaborative research projects on rare diseases funded under the Seventh Framework Programme for Research and Technological Development (FP7/2007-2013) [1]. As a wide, open and inclusive network, RARE-Bestpractices will build on the knowledge of the experts in rare disease
RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases
Pierpaolo Mincarone;Fabio Palazzo;Saverio Sabina;Roberto Guarino;
2014
Abstract
Over the last decade the European Union (EU) has been coordinating actions addressing various aspects of rare diseases and has funded several cross-border research projects. Recently the EU has initiated the biggest rare disease interna- tional collaborative effort by launching the International Rare Diseases Research Consortium (IRDiRC). RARE-Bestpractices is one of the more than 100 collaborative research projects on rare diseases funded under the Seventh Framework Programme for Research and Technological Development (FP7/2007-2013) [1]. As a wide, open and inclusive network, RARE-Bestpractices will build on the knowledge of the experts in rare diseaseFile | Dimensione | Formato | |
---|---|---|---|
prod_294798-doc_85872.pdf
non disponibili
Descrizione: Articolo
Tipologia:
Versione Editoriale (PDF)
Dimensione
149.3 kB
Formato
Adobe PDF
|
149.3 kB | Adobe PDF | Visualizza/Apri Richiedi una copia |
I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.